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Systemic Lupus Erythematosus (SLE)

The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults. Published: Oct 2017.

Systemic Lupus Erythematosus (SLE)

Causes and Risk Factors

SLE is a complex autoimmune disease, thought to develop from a genetic predisposition combined with environmental triggers that lead to autoantibody production and systemic inflammation.

Main causes and risk factors: [Ref]

Category Specific factors
Demographics
  • Females (~90% cases)
  • Reproductive age
  • More common in those of African, South Asian, and Chinese descent
Environmental triggers
  • UV exposure
  • Smoking
  • EBV infection
  • Occupational silica exposure (e.g. sandblasting, painting, foundry work)
Medications
  • Procainamide – most common
  • Hydralazine – most common
  • Statins
  • Beta blockers
  • ACE inhibitors

The above drugs would cause a reversibledrug-induced lupus” – which is fully reversible upon cessation of the medications

Known triggering factors for a SLE flare:

  • Sunlight exposure
  • Infections
  • Hormonal changes

Clinical Features and Diagnosis

The full 2019 EULAR/ACR classification criteria for SLE have been taken into account but not reproduced in full.

Instead, the sections below are based on the main classification domains, with important diagnostic and examination-relevant points highlighted where appropriate. Also note that the criteria were primarily intended for research classification.

An initial work-up of suspected SLE would include:

The “lupus panel” (serology)
  • ANA
  • SLE-specific antibodies (anti-dsDNA, anti-Sm antibodies)
  • C3 and C4
  • Antiphospholipid antibodies (anticardiolipin, anti-β2-glycoprotein I, lupus anticoagulant)
  • Other autoantibodies – anti-Ro (SSA), anti-La (SSB), and anti-RNP antibodies
Routine blood test
  • FBC and direct Coombs’ test
  • ESR and CRP
  • LFTs
  • Renal function
  • Creatine kinase
  • Other baseline (bone profile, vitamin D, thyroid function, baseline immunoglobulins)
Urine studies
  • Urinalysis
  • Proteinuria quantification (urine PCR or 24-hour urine collection)

Clinical Features

Clinical features of SLE as per body system: [Ref]

Body system Clinical features (those in bold are included in the 2019 EULAR/ACR diagnostic criteria)
Constitutional
  • Fever
  • General constitutional symptoms (e.g. fatigue, weight loss)
Mucocutaneous
  • Oral ulcers
  • Non-scarring alopecia
  • Acute cutaneous lupus
    • Malar rash (a fixed erythematous rash over the cheeks and bridge of the nose, producing the classic “butterfly” distribution which characteristically spares the nasolabial folds) (resolves without scarring)
    • Generalised maculopapular rash
  • Subacute cutaneous lupus – usually photodistributed and has 2 main appearances
    • Annular form: ring-shaped with central clearing
    • Papulosquamous form: raised, scaly resembling psoriasis
  • Discoid lupus (most common type of chronic cutaneous lupus)
    • Well-defined erythematous-to-violaceous, scaly plaques, most commonly affecting the face, scalp and ears
    • As the lesions persist, they may develop central atrophy, scarring and pigmentary changes
    • Involvement of the scalp can cause scarring alopecia

One might have noticed that both non-scarring and scarring alopecia are mentioned as a feature of SLE; explanation:

  • Non-scarring alopecia is the more typical form of lupus-related hair loss and is included within the SLE classification criteria
  • Scarring alopecia usually occurs in the context of discoid lupus. The classification criteria list discoid lupus itself rather than scarring alopecia as a separate criterion

Relationship between SLE and cutaneous lupus:

SLE is a multisystem autoimmune condition that may present with systemic and/or cutaneous manifestations.

Cutaneous lupus (erythematosus) primarily affects the skin. It may occur independently as a cutaneous-limited condition or alongside systemic diseases (i.e. SLE), depending on the subtype:

  • Acute cutaneous lupus: almost always occurs exclusively as part of the cutaneous manifestation of SLE
  • Subacute cutaneous lupus and discoid lupus: can occur independently as a cutaneous condition itself without systemic features (but may progress to SLE)
Musculoskeletal
  • Joint involvement (≥2 joints)
    • Active joint involvement typically presents with swelling, effusion, tenderness, morning stiffness for >30 min
    • Joint pain most commonly affects the hands
  • Jaccoud arthropathy (reducible joint deformity)

Jaccoud arthropathy (in SLE) vs rheumatoid arthritis

  • Jaccoud arthropathy may produce hand deformities resembling rheumatoid arthritis (e.g. ulnar deviation, swan-neck deformities, Z-thumb deformity). However, these deformities are reducible with passive movement
    • This is because the deformities primarily result from ligament and tendon laxity, rather than destruction of the joint surfaces
    • Therefore, joint X-rays in Jaccoud arthropathy typically do NOT show bone erosions
  • In rheumatoid arthritis, persistent inflammatory synovitis causes progressive damage to the cartilage, bone, tendons and ligaments
    • The resulting deformities are therefore usually fixed and non-reducible
    • X-rays may show bone erosions, joint-space narrowing and joint deformity.
Serosal
  • Pleural effusion
  • Pericardial effusion
  • Acute pericarditis
  • Pleuritis
  • Non-bacterial thrombotic endocarditis
  • Myocarditis
  • Pneumonitis
Neuropsychiatric
  • Delirium
  • Psychosis
  • Seizures

Serology and Inflammatory Markers

Autoantibodies (serology): [Ref]

Test Interpretation Notes
Antinuclear antibody (ANA) The main screening antibody for SLE. It is highly sensitive (~95%) but has poor specificity

A positive result should prompt testing for more specific autoantibodies

+ve ANA is required as the entry criterion for the 2019 EULAR/ACR classification criteria

-ve ANA makes SLE unlikely, while a +ve ANA is seen in ~5% healthy adults

Anti-dsDNA antibodies A specific but less sensitive marker for SLE A SLE-specific antibody

+ve anti-dsDNA makes SLE very likely

Anti-dsDNA antibodies have a role in monitoring disease activity as it correlates with disease activity (esp in lupus nephritis)

Anti-Smith (Sm) antibodies A specific but less sensitive marker for SLE A SLE-specific antibody

+ve anti-Smith makes SLE very likely

Antiphospholipid antibodies Includes anticardiolipin, or anti-β2-glycoprotein I, or lupus anticoagulant Antiphospholipid antibodies are seen in ~20-40% cases of SLE, but they are not considered SLE-specific antibodies

Also see the Antiphospholipid Syndrome (APS) article

Other autoantibodies, including anti-Ro/SSA, anti-La/SSB and anti-RNP, may also be positive in SLE. However, they are less specific for SLE because they can occur in other connective tissue diseases. They are NOT included as SLE-specific antibodies within the EULAR/ACR classification criteria.

Inflammatory markers: [Ref]

  • ↓ Complement levels (C3 and C4)
  • ↑ ESR
  • Normal CRP
    • CRP is typically normal in active SLE
    • ↑ CRP in a patient with SLE suggests infection or inflammation unrelated to SLE

Other Investigations

Investigations Typical finding in SLE
FBC
  • Leukopaenia (esp. leukopaenia)
  • Thrombocytopaenia
  • Autoimmune haemolysis (↓ Hb, +ve Coombs test, ↓ haptoglobin, ↑ reticulocytes, ↑ unconjugated bilirubin, ↑ LDH)
Renal investigations

Renal investigations are important as lupus nephritis can be clinically silent initially.

Initial screening:

  • U&Es
  • Urinalysis
    • If proteinuria is detected → quantify with urine PCR or 24-hour urine collection

If renal involvement is present → renal biopsy (see the Nephrotic and Nephritic Syndromes article for more information)

Biopsy Skin biopsy can confirm cutaneous lupus

Complications

[Ref]

Body system Complications
Cardiovascular
  • Cardiovascular disease (2x risk)
  • Cardiomyopathy

Patients are also at significantly higher risk of vascular thrombosismicrovascular kidney disease, and pulmonary hypertension (esp. in those with antiphospholipid bodies)

Renal
  • ~40% of patients with SLE develop lupus nephritis
  • ~10% of those with lupus nephritis will progress to end-stage kidney disease

See the Nephrotic and Nephritic Syndromes for more information on lupus nephritis

Musculoskeletal
  • Osteoporosis and osteoporotic fracture
  • Avascular necrosis (esp. femoral head)
Immune
  • ↑ Risk of life-threatening atypical infections (e.g. fungal infections, mycobacterial infections)

This is driven by both use of immunosuppressive therapy and SLE itself (e.g. leukopaenia)

Cancer
  • ↑ Overall risk of cancer
  • Non-Hodgkin lymphoma – most consistently associated with SLE
  • Significantly ↑ risk of cervical dysplasia and subsequent cervical cancer

Management

Conservative / General Management

Category Description Rationale
Sun protection
  • Strictly avoid sun exposure
  • Wear protective clothing
  • Use high sun protection factor sunscreen
UV exposure is a direct trigger for SLE flares
Cardiovascular risk reduction
  • Smoking cessation
  • Healthy diet
  • Regular exercise
  • Weight control
  • Optimise cardiovascular risk factors (e.g. hypertension, dyslipidaemia, diabetes)
Cardiovascular disease is a major cause of premature death in SLE
Infection prevention
  • Assess vaccination status
SLE itself and the use of immunosuppressive drugs increase risk of infection

Pharmacological Management

Prior to starting immunosuppressive medications, it is important to screen for the following infections:

  • Tuberculosis
  • Hepatitis B and C
  • HIV
  • HPV

Cornerstone therapy: hydroxychloroquine

  • Recommended to ALL patients unless contraindicated
  • To prevent flares, reduce damage and improve survival

Further therapy is guided by disease severity (simplified):

Disease severity Key clinical indications Specific therapies
Mild No organ threat

  • Malar rash
  • Alopecia
  • Mouth ulcers
  • Arthritis
  • Mild thrombocytopaenia
  • NSAIDs – for joint / muscle pain
  • Topical steroids – for cutaneous lesions
  • Methotrexate – for arthritis and rash
  • Low-dose prednisolone – for maintenance therapy
Moderate
  • At risk of chronic scarring
  • Pleurisy
  • Pericarditis
  • Hepatitis
  • Rash in up to 2/9 body surface area
  • Moderate thrombocytopaenia
  • Moderate steroids
  • Azathioprine (steroid-sparing)
  • Mycophenolate mofetil
  • Ciclosporin / tacrolimus
Severe
  • Organ- or life-threatening
  • Lupus nephritis
  • CNS lupus
  • Severe thrombocytopaenia
  • High-dose steroids
  • Cyclophosphamide

Options for refractory disease:

  • Belimumab
  • Rituximab
  • IVIG / plasmapheresis for emergencies

Monitoring

Patients with active SLE should be reviewed at least every 1-3 months (or 6-12 months in those with stable disease), with the following assessment:

  • Blood pressure
  • Urinalysis and renal function
  • Blood tests
    • Anti-dsDNA antibodies
    • Complement levels (C3/C4)
    • FBC, CRP, LFTs

The following should be assessed at least once a year:

  • Vitamin D levels
  • Routine cancer screening (esp. cervical screening) – as per national guidelines
  • Cardiovascular risk factors
  • Immunoglobulin levels

Drug-Induced Lupus

Typical presentation: [Ref]

  • Musculoskeletal and constitutional symptoms are common
  • Serositis (esp. pleuritis) is a hallmark
  • Mucocutaneous manifestation is uncommon

The key feature distinguishing drug-induced lupus from SLE is that it is usually reversible: clinical symptoms typically resolve within weeks to months after the causative medication is discontinued.

Typical serology: [Ref]

  • +ve ANA
  • +ve Anti-histone antibodies
  • -ve Anti-dsDNA and anti-Sm antibodies

References

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