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Myasthenia Gravis

Association of British Neurologists (ABN) autoimmune myasthenia gravis management guidelines (2025 update)

Myasthenia Gravis

Myasthenia gravis is an autoimmune neuromuscular junction disorder characterised by fluctuating, fatigable skeletal muscle weakness.

This updated UKMLA guide to myasthenia gravis is based on ABN guidelines, which cover causes, risk factors, symptoms, diagnosis and management.

Causes and Risk Factors

Myasthenia gravis is caused by autoantibodies against components of the postsynaptic neuromuscular junction:

  • Anti-acetylcholine receptor (AChR) antibodies – most common
  • Anti-muscle-specific tyrosine kinase (MuSK)
  • Anti-lipoprotein receptor-related protein 4 (LRP4)

These antibodies impair acetylcholine-mediated neuromuscular transmission, resulting in skeletal muscle weakness.

Risk factors and associations: [Ref]

  • Thymoma or thymic hyperplasia (in ~10% of patients)
  • More common in females <40 y/o and more common in males >50 y/o
  • Other autoimmune conditions (esp. autoimmune thyroid disease like Graves’ disease and Hashimoto’s thyroiditis)

Clinical Features

General Features

[Ref1][Ref2]

Signs and symptoms Hallmark features: fluctuating, fatigable skeletal muscle weakness

  • Extraocular muscle weakness (seen in ~85% of patients on initial presentation) → ptosis, diplopia
  • Bulbar muscle weakness → difficulty chewing, frequent choking, dysphagia, dysarthria, hoarseness
  • Symmetrical limb weakness
    • Proximal muscle more affected than distal muscle
    • Upper limb more affected than the lower limb

Clinical manifestation of “fatigability“:

  • Ptosis: eyelid droops more after looking upwards for a while
  • Diplopia: double vision becomes worse later in the day
  • Chewing fatigue: chewing is normal at first, but becomes difficult during a meal
  • Speech fatigue: speech becomes slurred or nasal or hoarse after prolonged talking
  • Limb weakness: weakness becomes more prominent after repeatedly climbing stairs

Apart from skeletal muscle weakness, generalised fatigue is a very common symptom affecting up to 80% of patients

Clinical provocation / manoeuvres Ice-pack test:

  • Test description: an ice pack is applied over the closed ptotic eyelid for ~2 min. The degree of ptosis is compared before and after the ice pack (via photography)
  • +ve Test finding: improvement in ptosis after the ice pack

Simpson test:

  • Test description: patient is asked to look up for ~1-2 min, and the eyelids are observed for fatigability
  • +ve Test finding: worsening ptosis +/- diplopia while looking up

Bienfang’s test:

  • Test description: patient is asked to squeeze their eye shut tightly for 5-10 sec, then open their eyes and fixate on a target straight ahead
  • +ve Test finding: a brief upward elevation of the upper eyelid, followed by downward drift back into the ptotic position

Cogan’s lid twitch sign:

  • Test description: patient is asked to look downwards for ~10-15 sec then rapidly return their gaze to the primary position
  • +ve Test finding: brief upward twitch / overshoot of the upper eyelid, followed by return to the ptotic resting position
Exacerbating factors
  • Infection
  • Surgery
  • Heat (e.g. hot weather, fever)
  • Emotional stress
  • Pregnancy / postpartum
  • Certain medications
    • Beta blockers
    • Antiarrhythmics (e.g. quinidine, procainamide)
    • Antibiotics (aminoglycosides, fluoroquinolones, macrolides)
    • Steroids (initiating / reducing / stopping)
    • Magnesium
    • Lithium
    • Neuromuscular blocking agents (e.g. suxamethonium, rocuronium)
Features absent in myasthenia gravis The following are NOT typical of myasthenia gravis (as myasthenia gravis is a neuromuscular junction disorder affecting skeletal muscles)

  • Reflexes
  • Pupils
  • Sensory loss
  • Autonomic symptoms (e.g. bowel / bladder dysfunction, heart rate or BP fluctuation)
  • UMN signs (e.g. spasticity, hypertonia, hyperreflexia, Babinski sign)
  • LMN signs (e.g. atrophy, fasciculations, hypotonia, hyporeflexia)

Myasthenic Crisis

Myasthenia crisis is a medical emergency – a severe exacerbation of MG causing respiratory muscle weakness, which may lead to respiratory failure.

Features of impending myasthenic crisis:

  • Worsening breathlessness
  • Other signs of respiratory failure include rapid shallow breathing, use of accessory muscles, orthopnoea
  • A progressive drop in FVC
  • Significant neck drop
  • Bulbar features
    • Frequent choking
    • Severe dysarthria (difficulty speaking)

Myasthenia Gravis vs Lambert-Eaton Syndrome

[Ref]

Feature Myasthenia gravis Lambert-Eaton syndrome
Mechanism Affects the post-synaptic NMJ

Antibodies against acetylcholine receptor

Affects the pre-synaptic NMJ

Antibodies against voltage-gated calcium channels

Cause and association ~10% cases are associated with thymoma ~50% cases are paraneoplastic (triggered by cancer, specifically small cell lung cancer)
Typical clinical features
  • Weakness worsens with repeated use (fatigable)
  • Extraocular muscles often affected first
  • Normal reflexes
  • Absence of autonomic features
  • Weakness improves with repeated use
  • Proximal limb often affected first (symmetrical weakness affecting LL > UL)
  • Reduced / absent reflexes
  • Autonomic symptoms are common (e.g. dry mouth, constipation, erectile dysfunction)
EMG with repetitive nerve stimulation Decremental response Incremental response
Response to treatment Responds well to cholinesterase inhibitors (e.g. pyridostigmine) Responds well to amifampridine but poor response to cholinesterase inhibitors

Investigation and Diagnosis

1st line investigations (ALL patients):

Investigations Description / notes
Anti-acetylcholine receptor (AChR) antibody testing Positive anti-acetylcholine receptor antibody PLUS compatible clinical features are sufficient to diagnose myasthenia gravis without further investigations
TFT  Purpose: to screen for concurrent thyroid disorders
Thymus imaging (CT / MRI) Purpose: to exclude an underlying thymoma or thymic hyperplasia

A chest X-ray is NOT sufficient

Further investigations are necessary if there is -ve anti-AChR antibody:

Investigations Description /  notes
Further antibody testing (serology)
  • Anti-MuSK antibody
  • Anti-LRP4 antibody
Electromyography (EMG)
  • 1st line: repetitive nerve stimulation (a decremental response supports myasthenia gravis)
  • If equivocal: single-fibre EMG

Note that pyridostigmine should be withheld for at least 12 hours before testing and symptomatic muscles must be targeted

MRI of the brain and orbits is indicated with those with diplopia and ptosis AND -ve serology AND –ve electromyography to exclude structural intracranial or  orbital diseases

Investigations in summary:

  • 1st line: anti-acetylcholine receptor (AChR) antibody testing
  • Definitive: electromyography (EMG) – not always necessary if anti-AChR is +ve

Nerve conduction studies are usually normal in myasthenia gravis because the peripheral nerves are structurally intact.

In myasthenia gravis, the pathology lies at the neuromuscular junction, rather than within the nerve itself.

Management

Long-Term Management

1st line management:

  • Pyridostigmine for symptomatic management of ocular and mild-to-moderate generalised symptoms
  • If a thymoma is identified → thymectomy

Pyridostigmine:

  • MoA: cholinesterase inhibitor (inhibits cholinesterase – the enzyme that breaks down acetylcholine → increases availability of acetylcholine at the NMJ → improves nerve-to-muscle signal transmission and reduces muscle weakness)
  • Pyridostigmine is typically dosed TDS or QDS (but is highly individualised)
  • Use with caution in those with a history of asthma or cardiac disease (ECG should be performed before starting it)

Step up therapy (if symptoms persist despite maximum tolerated dose of pyridostigmine for 4-6 weeks):

  • 1st line: oral prednisolone (initial higher induction dose, followed by lower maintenance dose)
  • If steroids are insufficient or inappropriate (e.g. unsafe or due to side effects): steroid-sparing agents (e.g. azathioprine, mycophenolate)

Rituximab is recommended for early use in all symptomatic patients with anti-MuSK myasthenia gravis. This specific antibody type is often refractory to conventional treatment.

Acute Myasthenic Crisis

Aspect / category Management
Care setting Patients should be managed in HDU / ITU setting
Airway / breathing support and monitoring
  • FVC monitoring
    • Drop of >30% FVC from baseline should prompt immediate ICU referral
    • Pulse oximetry is NOT a reliable monitoring parameter, as oxygen desaturation happens very late in neuromuscular respiratory failure
  • Provide respiratory support
    • Initial: high-flow nasal oxygen or NIV
    • If ventilatory support is necessary, semi-elective intubation is highly preferred over an emergency intubation
Feeding support
  • Insert NG tube for nutrition, hydration, and safe medication administration
Rescue therapy 2 main options (both have similar efficacy, initial choice often depends on what is locally available):

  • Plasma exchange (4-5 sessions over 5-10 days) – preferred if available
  • IV immunoglobulin (IVIg)

Do NOT routinely give both at the same time.

If the patient fails to improve after one course of either plasma exchange or IVIg, seek specialist opinion.

If IVIg failed, either switch to plasma exchange (preferred) or attempt a 2nd course of IVIg

Adjusting standard / long-term medications Increase corticosteroid dose

If the patient is intubated, do NOT continue pyridostigmine

  • Rationale: it increases oral and respiratory secretions
  • It may need to be temporarily withheld while the patient is intubated and restarted before extubation.

Delay starting long-term non-steroidal immunosuppressive therapies until the acute crisis has resolved

Treat any concurrent infections promptly as they might have triggered the crises. Avoid antibiotics known to exacerbate myasthenia gravis (aminoglycosides, macrolides, fluoroquinolones)

References

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